Over the last five years, we have been collecting data from families across the UK and worldwide with children with intellectual disability of known genetic aetiology. IMAGINE ID has successfully collected the largest set of genotypic and phenotypic data in children with intellectual disability, with the aim to collaborate and share our data. The IMAGINE ID research data are available as a resource for the scientific community to maximize the value of the data for research and eventual patient and public benefit. The IMAGINE ID database will be available to the scientific community by the 31st October 2019.
Confidentiality and access remain of upmost importance to all of us, which is why we have created a new page with further details of the data available to the scientific community and our access policies, as well as information on how we will maintain participant confidentiality at all times. For more information look at the page here and for any further questions, please contact firstname.lastname@example.org