How will my child benefit?
Please note: Recruitment into the IMAGINE ID study has now closed.
For families still completing the DAWBA:
If your family joins the study and your child is aged under 19 years old, you will receive a personalised summary report of your child’s strengths and difficulties. You may find it a useful report if your child has assessments for services, school or specialist treatments.
Joining IMAGINE ID offers a chance to help learn more about children living with rare genetic conditions and to understand these conditions better. Taking part in the study may not change things for your own child straight away, but it will help other families and doctors get better information about children’s development and behaviour in the future.
Parents are often experts in their own child’s behaviour and well-being, so collecting information and knowledge from families is very important. Sharing your knowledge and know-how will be very useful to other families.