Can my family take part in IMAGINE ID?
After 5 years of being open to individuals with learning disabilities that have a genetic diagnosis, we have now closed recruitment.
We will be inviting families who participated in IMAGINE ID to take part in a follow up study called IMAGINE 2.
What were families asked to do?
Families were asked to complete some online questionnaires through a secure internet connection. These asked about their child’s behaviour, development and medical history. We also asked parents and/or carers about your own health. If children wanted to take part, we asked them to complete a fun drawing task.
How did children benefit?
Families with children aged 19 and under received a personalised summary report of their child’s strengths and difficulties. They may have found these useful for assessments for services, school or specialist treatments.
We are interested in joining, what are the next steps?
Unfortunately we are not recruiting new families to take part in IMAGINE 2. Only families who took part in the first phase of the IMAGINE ID study are eligible to take part in IMAGINE 2.