IMAGINE ID is on social media, click the buttons below to follow us on Twitter and Facebook for all the latest news and updates. Why not share our page, and help spread the word?
Researchers from IMAGINE-ID have identified a link between sleep and mental health in children with rare neurodevelopmental genetic conditions. In a new stud... read more
We would like to invite 16 families with children aged 10 to 15 to take part in the Digital Intervention for IMAGINE (Dii) Study. As you know, IMAGINE children... read more
The IMAGINE ID team have published: "Neuropsychiatric risk in children with intellectual disability of genetic origin: IMAGINE - The UK National Cohort Stud... read more
The IMAGINE ID Team was invited by the University of Edinburgh in June 2022 to present at the Neurodevelopmental Annual Seminar. Feedback on IMAGINE 1 DAWBA ... read more
On Thursday 25th November we held our second Study Consultation Group. In the session, we gathered feedback on our study plans for 2022. You can view our meetin... read more
If you are interested in taking part in IMAGINE 2 with your child or young person we are now accepting self-referrals and would love to hear from you! The el... read more
Opportunity to take part in our new arts project: a collaboration between IMAGINE 2 and Creative Complexity Creative Complexity is a Wellcome Trust funded proj... read more
On Saturday 27th March we held our first Study Consultation Group. In the session, we gathered feedback on our first survey and reports. You can view our meetin... read more
In July 2020 we invited IMAGINE ID parents to take part in a study which aimed to find out about their experiences of the coronavirus (COVID-19) pandemic. The s... read more
As we prepare to launch IMAGINE 2, we are delighted to formally recruit a voluntary consultation group to help shape the study. It is important to us that the ... read more
We have compiled a list of links to resources that you may find useful for help and support, particularly during COVID-19. Unique: COVID-19 General Advice ... read more
We would like to invite 20 families to take part in the Imagine-ID Coronavirus Experiences Study. Many children have been really worried about the risk of infec... read more
We're delighted to let you know that the IMAGINE-ID study has been funded for another 5 years by the UK Medical Research Council. Thank you for making the first... read more
A new international study led by IMAGINE-ID researchers Dr Samuel Chawner and Prof Marianne van den Bree has been published in the American Journal of Psychiat... read more
Parents of children with genetic conditions that cause learning disabilities are at risk of mental health problems, suggests new IMAGINE-ID research published t... read more
Our wonderful children's book, Avery, is now available as an audiovisual recording! Many families have told us how much they enjoy reading Avery at story-tim... read more
We have now completed recruitment of over 3,400 families. We are seeking further funding to follow up these families to understand the long-term impact of a gen... read more
After 5 years, IMAGINE ID has closed recruitment to new families joining the study. Our current funding from the Medical Research Council and Medical Research ... read more
On Sunday 7 July 2019 we were very pleased to host our IMAGINE ID Family Fun Day. Held in Coventry, we wanted to create a relaxed day for our fabulous families ... read more
The IMAGINE ID team at Cardiff University have had their work on 258 children with deletions and duplications in their DNA published by Lancet Psychiatry. These... read more
Over the last five years, we have been collecting data from families across the UK and worldwide with children with intellectual disability of known genetic aet... read more
Families joining IMAGINE ID are encouraged to join as soon as possible as the time left to register and join the research gets closer. We are just 300 away fro... read more
IMAGINE ID is a research study that aims to increase understanding of children and young people with intellectual disability. More than 2,700 families have join... read more
We have been overwhelmed by the response to our Family Fun Day later this year. The event is currently fully booked but please do sign up to our waiting list an... read more
IMAGINE ID has been open since late 2014 and we are pleased to say over 2,750 individuals with various different genetic changes have joined the project so... read more
The Imagine ID team were at the latest Kidz to Adultz exhibition, this time held in Farnborough. As always the event was free to attend and was dedicated to chi... read more
DiNA, the Imagine ID Dinosaur! Thank you to Prabdeep for colouring in DiNA at the recent Kidz to Adultz exhibition in Farnborough. We love how colourful he h... read more
A big thank you to Hayley Monk, and her family, who feature in this Cambridge News article (16 May 2018). Hayley's son, Ethan, was diagnosed with Williams Syn... read more
Since our last project update we have recruited nearly 500 more families to our study. We now have over 2300 participants which is fantastic news! In fact we re... read more
You may have seen that we are spreading the word about our project and asking for more families to join. Our "We need your help" advert has been appearing in po... read more
Parent carer, Hayley Monk, wrote this article about her family's experience with the Imagine ID study. Her son, Ethan, has a chromosome disorder. Personalised ... read more
We were very pleased to feature in the latest Rare Minds edition for the Rare Revolution Magazine. Professor Lucy Raymond wrote about our aims and current p... read more
We desperately need your help! We urgently need more families to take part! IMAGINE ID has been running for over 2 years now and we are pleased to say over 1... read more
Genetic Research Benefits How does a genetic research study benefit those taking part? Does research only help and become especially relevant to families years... read more
After so much lovely feedback about Avery and also many requests to purchase this beautiful book we are very pleased to announce that copies can now be bought ... read more
We're excited to announce a new children's book, Avery, has been published. The book was written and illustrated by Marta Altes in association with one of the I... read more
We now have nearly 1500 families who have signed up to IMAGINE ID, that’s a 50% increase in the last six months! By participating, these families are helping ... read more
Our friends at Rare Revolution Magazine, who raise awareness of rare disease, are up to something a bit special. For the first time, they are putting down t... read more
We're pleased to announce Prof Lucy Raymond will be presenting at the Cambridge Science Festival. Her talk ‘Parents as partners in research’ will be on Th... read more
IMAGINE ID will have a free exhibition stand at The Guildhall, Market Square, Cambridge, CB2 3QJ as part of the Cambridge Science Festival. Families can take pa... read more
We were delighted to hear so many IMAGINE ID families were taking part in activities on 28th February 2017 to mark the tenth annual Rare Disease day which this ... read more
From all at the IMAGINE ID team, we would like to wish you a very happy and healthy 2017 ahead. We are delighted that we currently have over 1,100 families wh... read more
We are excited to announce we will be introducing a new, fun assessment for children! This new task is called ‘draw a person’. It estimates your child’... read more
The number of families that have signed up to IMAGINE ID is now over 950, which is a fantastic achievement. With our overall aim of 5,000 to 10,000 families bei... read more
IMAGINE ID successfully hosted their first Recruitment Knowledge Exchange workshop in September 2016, aimed at recruitment coordinators working within regio... read more
IMAGINE ID researchers, Marie and Eleanor, attended the Chromosome 18 Registry and Research Society Europe conference held in Rome during Summer 2016. The soc... read more
IMAGINE ID in collaboration with Genetic Alliance UK hosted a very successful event for families affected by 16p11.2 deletion and duplication syndromes on 22n... read more
IMAGINE ID is on social media, click the buttons below to follow us on Twitter and Facebook for all the latest news and updates. Why not share our page, and help spread the word?
