The IMAGINE ID Team was invited by the International Society for Autism Research in May 2023  to present at their annual conference in Stockholm.  Impact of... read more

New Research from IMAGINE-ID: Sleep & Mental Health

Researchers from IMAGINE-ID  have identified a link between sleep and mental health in children with rare neurodevelopmental genetic conditions. In a new stud... read more

Digital Interventions for IMAGINE

We would like to invite 16 families with children aged 10 to 15 to take part in the Digital Intervention for IMAGINE (Dii) Study. As you know, IMAGINE children... read more

IMAGINE 1 Article: In the Media

Following the IMAGINE 1 article's publication in the Lancet Psychiatry in August 2022, here are some of the organisations that have shared our work: Un... read more

IMAGINE ID: Research Publication

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IMAGINE ID Team in Edinburgh

The IMAGINE ID Team was invited by the University of Edinburgh in June 2022 to present at the Neurodevelopmental Annual Seminar.  Feedback on IMAGINE 1 DAWBA ... read more

November 2021 Study Consultation Group Meeting

On Thursday 25th November we held our second Study Consultation Group. In the session, we gathered feedback on our study plans for 2022. You can view our meetin... read more

IMAGINE 2 Open to New Recruitment

If you are interested in taking part in IMAGINE 2 with your child or young person we are now accepting self-referrals and would love to hear from you!  The el... read more

We IMAGINE drawing and poetry

Opportunity to take part in our new arts project: a collaboration between IMAGINE 2 and Creative Complexity Creative Complexity is a Wellcome Trust funded proj... read more

First Study Consultation Group Meeting

On Saturday 27th March we held our first Study Consultation Group. In the session, we gathered feedback on our first survey and reports. You can view our meetin... read more

Coronavirus Experiences Study Findings

In July 2020 we invited IMAGINE ID parents to take part in a study which aimed to find out about their experiences of the coronavirus (COVID-19) pandemic. The s... read more

Volunteer for our Study Consultation Group

As we prepare to launch IMAGINE 2, we are delighted to formally recruit a voluntary consultation group to help shape the study. It is important to us that the ... read more

COVID-19 resources

We have compiled a list of links to resources that you may find useful for help and support, particularly during COVID-19. Unique: COVID-19 General Advice ... read more

Coronavirus Experiences Study

We would like to invite 20 families to take part in the Imagine-ID Coronavirus Experiences Study. Many children have been really worried about the risk of infec... read more

IMAGINE 2 Funding News 2020

We're delighted to let you know that the IMAGINE-ID study has been funded for another 5 years by the UK Medical Research Council. Thank you for making the first... read more

New IMAGINE-ID Autism Article

A new international study led by IMAGINE-ID researchers Dr Samuel Chawner and Prof Marianne van den Bree has been published in the American Journal of Psychiat... read more

New research from IMAGINE ID

Parents of children with genetic conditions that cause learning disabilities are at risk of mental health problems, suggests new IMAGINE-ID research published t... read more

Avery Audiovisual book

Our wonderful children's book, Avery, is now available as an audiovisual recording!  Many families have told us how much they enjoy reading Avery at story-tim... read more

Future of IMAGINE ID

We have now completed recruitment of over 3,400 families. We are seeking further funding to follow up these families to understand the long-term impact of a gen... read more

Study recruitment now closed

After 5 years, IMAGINE ID has closed recruitment to new families joining the study. Our current funding from the Medical Research Council and Medical Research ... read more

Avery Craft at our Family Fun Day

On Sunday 7 July 2019 we were very pleased to host our IMAGINE ID Family Fun Day. Held in Coventry, we wanted to create a relaxed day for our fabulous families ... read more

Newly published research from IMAGINE ID

The IMAGINE ID team at Cardiff University have had their work on 258 children with deletions and duplications in their DNA published by Lancet Psychiatry. These... read more

Research data access

Over the last five years, we have been collecting data from families across the UK and worldwide with children with intellectual disability of known genetic aet... read more

Recruitment closing soon

Families joining IMAGINE ID are encouraged to join as soon as possible as the time left to register and join the research gets closer. We are just 300 away fro... read more

IMAGINE ID Research Opportunity: Can you help?

IMAGINE ID is a research study that aims to increase understanding of children and young people with intellectual disability. More than 2,700 families have join... read more

Family Fun Day – Sunday 7 July 2019

We have been overwhelmed by the response to our Family Fun Day later this year. The event is currently fully booked but please do sign up to our waiting list an... read more

Season’s Greetings and Happy New Year

IMAGINE ID has been open since late 2014 and we are pleased to say over 2,750 individuals with various different genetic changes have joined the project so... read more

Kidz to Adultz 2018

The Imagine ID team were at the latest Kidz to Adultz exhibition, this time held in Farnborough. As always the event was free to attend and was dedicated to chi... read more

DiNA Dinosaur – Wall of Fame

DiNA, the Imagine ID Dinosaur! Thank you to Prabdeep for colouring in DiNA at the recent Kidz to Adultz exhibition in Farnborough. We love how colourful he h... read more

Read all about it!

A big thank you to Hayley Monk, and her family, who feature in this Cambridge News article (16 May 2018). Hayley's son, Ethan, was diagnosed with Williams Syn... read more

Project Update – May 2018

Since our last project update we have recruited nearly 500 more families to our study. We now have over 2300 participants which is fantastic news! In fact we re... read more

We need your help

You may have seen that we are spreading the word about our project and asking for more families to join. Our "We need your help" advert has been appearing in po... read more

A family’s experience

Parent carer, Hayley Monk, wrote this article about her family's experience with the Imagine ID study. Her son, Ethan, has a chromosome disorder. Personalised ... read more

Finding answers for Developmental Delay

We were very pleased to feature in the latest Rare Minds edition for the Rare Revolution Magazine. Professor Lucy Raymond wrote about our aims and current p... read more

A plea for help at this festive time of year!

We desperately need your help! We urgently need more families to take part! IMAGINE ID has been running for over 2 years now and we are pleased to say over 1... read more

Genetic Research Study Feedback

Genetic Research Benefits How does a genetic research study benefit those taking part? Does research only help and become especially relevant to families years... read more

AVERY – buy online

After so much lovely feedback about Avery and also many requests to purchase this beautiful book we are very pleased to announce that copies can now be bought ... read more

Avery – new children’s book

We're excited to announce a new children's book, Avery, has been published. The book was written and illustrated by Marta Altes in association with one of the I... read more

Project Update – the latest May 2017

We now have nearly 1500 families who have signed up to IMAGINE ID, that’s a 50% increase in the last six months! By participating, these families are helping ... read more

Rare Revolution – Kids Takeover!!

Our friends at Rare Revolution Magazine,  who raise awareness of rare disease,  are up to something a bit special. For the first time, they are putting down t... read more

Upcoming event 23/03/17: Parents as partners in research

We're pleased to announce Prof Lucy Raymond will be presenting at the Cambridge Science Festival.  Her talk ‘Parents as partners in research’ will be on Th... read more

Upcoming event 19/03/17 IMAGINE ID exhibition stand

IMAGINE ID will have a free exhibition stand at The Guildhall, Market Square, Cambridge, CB2 3QJ as part of the Cambridge Science Festival. Families can take pa... read more

Rare Disease Day 2017

We were delighted to hear so many IMAGINE ID families were taking part in activities on 28th February 2017 to mark the tenth annual Rare Disease day which this ... read more

Happy New Year!

From all at the IMAGINE ID team, we would like to wish you a very happy and healthy 2017 ahead. We are delighted that we currently have over 1,100 families wh... read more

New assessments available!

We are excited to announce we will be introducing a new, fun assessment for children! This new task is called ‘draw a person’. It estimates your child’... read more

Project update- the latest November 2016

The number of families that have signed up to IMAGINE ID is now over 950, which is a fantastic achievement. With our overall aim of 5,000 to 10,000 families bei... read more

Workshop for genetics centres

IMAGINE ID successfully hosted their first Recruitment Knowledge Exchange workshop in September 2016, aimed at recruitment coordinators working within regio... read more

IMAGINE ID team in Rome

IMAGINE ID researchers, Marie and Eleanor, attended the Chromosome 18 Registry and Research Society Europe conference held in Rome during Summer 2016. The soc... read more

Successful family day for 16p11.2 Syndromes

IMAGINE ID in collaboration with Genetic Alliance UK hosted a very successful event for families affected by 16p11.2 deletion and duplication syndromes on 22n... read more

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