The number of families that have signed up to IMAGINE ID is now over 950, which is a fantastic achievement. With our overall aim of 5,000 to 10,000 families being part of the project, we still have a fair way to go but with families joining from their regional genetics centre, patient support groups, charities and through social media we hope to reach this target by the time the project finishes in 2019.
From our participants, 70% have fully completed their assessments and received their personalised summary reports. Feedback from the families receiving these reports has been very encouraging and positive, with the family typically receiving it 2-4 weeks after completing the assessments. See an example of what the report will look like.