Digital Interventions for IMAGINE

We would like to invite 16 families with children aged 10 to 15 to take part in the Digital Intervention for IMAGINE (Dii) Study.

As you know, IMAGINE children are more likely to experience mental health and behavioural difficulties than their typically developing peers. We would like to develop a digital intervention to support families caring for a child with rare genetic disorders with anxiety or behavioural difficulties. We’d like your advice on how best to do this. Taking part in this study will involve you and your child attending focus groups (face to face and online).

We’ll be summarising the findings of this research on our website. We won’t identify any individuals; all comments will be anonymised.

If you would like to take part in our focus groups, please get in touch with Jeanne at or 0207 905 2168. We will get in touch with you and explain everything in more detail.

More information about the study can be found here: 

Parent Information sheet

Child Information Sheet

This study has been approved by the UCL Research Ethics Committee (9553/003).