A family’s experience

Parent carer, Hayley Monk, wrote this article about her family's experience with the Imagine ID study. Her son, Ethan, has a chromosome disorder. Personalised ... read more

We need your help

If you have a copy of the Feb/Mar 2018 Issue of pos'ability magazine you may have seen our call for help. We are spreading the word about our project and asking... read more

Finding answers for Developmental Delay

We were very pleased to feature in the latest Rare Minds edition for the Rare Revolution Magazine. Professor Lucy Raymond wrote about our aims and current p... read more

A plea for help at this festive time of year!

We desperately need your help! We urgently need more families to take part! IMAGINE ID has been running for over 2 years now and we are pleased to say over 1... read more

Genetic Research Study Feedback

Genetic Research Benefits How does a genetic research study benefit those taking part? Does research only help and become especially relevant to families years... read more

AVERY – buy online

After so much lovely feedback about Avery and also many requests to purchase this beautiful book we are very pleased to announce that copies can now be bought ... read more

Avery – new children’s book

We're excited to announce a new children's book, Avery, has been published. The book was written and illustrated by Marta Altes in association with one of the I... read more

Project Update – the latest May 2017

We now have nearly 1500 families who have signed up to IMAGINE ID, that’s a 50% increase in the last six months! By participating, these families are helping ... read more

Rare Revolution – Kids Takeover!!

Our friends at Rare Revolution Magazine,  who raise awareness of rare disease,  are up to something a bit special. For the first time, they are putting down t... read more

Upcoming event 23/03/17: Parents as partners in research

We're pleased to announce Prof Lucy Raymond will be presenting at the Cambridge Science Festival.  Her talk ‘Parents as partners in research’ will be on Th... read more

Upcoming event 19/03/17 IMAGINE ID exhibition stand

IMAGINE ID will have a free exhibition stand at The Guildhall, Market Square, Cambridge, CB2 3QJ as part of the Cambridge Science Festival. Families can take pa... read more

Rare Disease Day 2017

We were delighted to hear so many IMAGINE ID families were taking part in activities on 28th February 2017 to mark the tenth annual Rare Disease day which this ... read more

Happy New Year!

From all at the IMAGINE ID team, we would like to wish you a very happy and healthy 2017 ahead. We are delighted that we currently have over 1,100 families wh... read more

New assessments available!

We are excited to announce we will be introducing a new, fun assessment for children! This new task is called ‘draw a person’. It estimates your child’... read more

Project update- the latest November 2016

The number of families that have signed up to IMAGINE ID is now over 950, which is a fantastic achievement. With our overall aim of 5,000 to 10,000 families bei... read more

Workshop for genetics centres

IMAGINE ID successfully hosted their first Recruitment Knowledge Exchange workshop in September 2016, aimed at recruitment coordinators working within regio... read more

IMAGINE ID team in Rome

IMAGINE ID researchers, Marie and Eleanor, attended the Chromosome 18 Registry and Research Society Europe conference held in Rome during Summer 2016. The soc... read more

Successful family day for 16p11.2 Syndromes

IMAGINE ID in collaboration with Genetic Alliance UK hosted a very successful event for families affected by 16p11.2 deletion and duplication syndromes on 22n... read more

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