We are delighted to announce the publication of a new children’s book, Avery. The book was written to help start conversations between children, families and doctors about rare disease and research. Prof Lucy Raymond, one of the Principal Investigators of IMAGINE ID, collaborated with illustrator, Marta Altes and Pam Smy from Anglia Ruskin University with the aim of honouring the children and families that have inspired our research.

Avery has been published and printed in collaboration with IMAGINE ID and as a thank you for their continuing involvement in the project, all of the families that have joined the project will receive a free copy in the post.

You can also purchase a copy of Avery here.  

What do you think about the book? Leave your feedback on our survey here (all responses are anonymous).


 Front cover with title