What are the benefits of taking part in the IMAGINE ID Study?

If your family joins the study, you will receive a personalised summary of your child’s strengths and difficulties. You may find this useful if your child has assessments for services, school or specialist treatments.

Joining IMAGINE ID offers a chance to help learn more about children living with rare genetic conditions and to understand these conditions better. Taking part in the study may not change things for your own child straight away, but it will help other families and doctors get better information about children’s development and behaviour in the future.